Let’s be honest — gratitude isn’t always easy, I get it and I am one who 100% knows how lucky I am. But I am also the first to admit that gratitude isn’t always easy. Especially when your body doesn’t cooperate. When you wake up already tired. When plans are cancelled again, because you just…
Tag: Invisible Symptoms
When Life (and MS) Tells You It’s Time to Pivot – Tysabri to Mavenclad
When MS changes the plan sometimes the only choice is to pivot – with faith, courage and a little grit
My Action Plan for MS – Weathering the Storms & A bonus of Smoked Burnt Ends Pork Belly
Living with Multiple Sclerosis means learning to expect the unexpected — flares happen, and they can turn a normal day upside down. Over the years, I’ve built my own action plan for when MS tries to take the wheel. From being honest with loved ones and tracking symptoms to practicing self-compassion and finding joy in small things (like a bowl of cornbread or time in the garden), these steps help me navigate the storms with grace, grit, and a little bit of hope.
What doctors may not tell you when you are first diagnosed with MS
When I was first diagnosed with MS, I had no idea what to expect. Over time, I’ve learned that doctors can’t tell you everything—because every journey is unique. Here’s what I wish I’d known back then about living, learning, and finding grace through the unknown.
That Escalated Quickly & Indulgent Cannabis Infused Cream
How do you prioritize care when you have multiple Chronic Health conditions?
That Darn Disability “Form” Again
This year is going to be different!
My Chronic Life
Did you know that 2.8 million people worldwide have MS (1 in 3,000 people). And globally, approximately one in three of all adults suffer from multiple chronic conditions (MCCs). “Get well soon or I hope all is well!” Both common things to say to someone who is under the weather, and while the sentiment is…
Lessons I missed in school, recent relapse & Cinnamon Raisin Artisan Bread
I am back…….anyway, I think I’m back. As if the whole COVID pandemic isn’t stressful enough, my Multiple Sclerosis has decided that it would like to start acting up again after a year and a half of being off a Disease Modifying Drug (DMD) and doing really well, I have relapsed. This is a real…
Things your Dr might not tell you when you are diagnosed with Multiple Sclerosis
I have now lived with MS for over 15 years and while I am definitely not an expert, I have come up with a little list of things that I wish my Doctors had told me when I was first diagnosed. You may be someone who is new to an MS diagnosis or you may…
Confession time……..& Canned Roasted Tomato Basil Pasta Sauce
Confessions of a pumpkin spice…………….